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Here at Lungs&You®, you can find information about pulmonary fibrosis, idiopathic pulmonary fibrosis (IPF), and interstitial lung disease (ILD). ILD can be a serious condition that may cause scarring of the lungs. When ILD causes scarring of lungs, it’s often referred to as pulmonary fibrosis. There are many different types of ILD—some with known causes and some with unknown causes. IPF is one of the most common types of ILD and has an unknown cause.

For the last several years, Lungs&You® has been a helpful resource for people with IPF. Recently, we broadened the site to include information about many types of ILD that can progress, or get worse over time, while maintaining our extensive support for those with IPF.

Looking for Answers but Don’t Know Where to Start?

Answer the questions below and we’ll help you find resources for your specific needs.

Who are you finding
information for?

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Could What You're Feeling Be a Sign of ILD?

If you’re wondering if you could have ILD, we want to help you continue looking for answers.
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We're here for you.

Call 1-844-473-2638 for support.

Sometimes, you just need to talk through your struggles with someone who cares. Call the Lungs&You® Call Center to speak with someone who can help you get the information you need to help take an active role in your health.*

*Lungs&You® does not provide medical advice. Please consult with your healthcare provider if you have specific questions about your health.

Causes of ILD

ILD can be caused by a variety of things like certain underlying autoimmune diseases, environmental substances, occupational exposures, and more. Sometimes the cause of ILD is unknown. Explore some common causes of ILD below.

Autoimmune Conditions

Rheumatoid arthritis (RA)

Scleroderma

Sjogren’s syndrome

Mixed connective tissue disease (MCTD)

Myositis

Environmental Substances

Repeated exposure to certain environmental substances can lead to a type of ILD called hypersensitivity pneumonitis (HP). These substances may include:

Moldy hay and grain

Wood dust

Bird droppings and feathers

Hot tubs

Air conditioner, humidifier, and ventilation systems

Sarcoidosis

Occupational
Dusts or Fibers

Silica

Asbestos fibers

Coal

Sand

Farming and livestock

Unknown Causes

Sometimes the cause of ILD is unknown. When there is not a known cause, it’s called an idiopathic interstitial pneumonia. There are different types of idiopathic interstitial pneumonias, including:

Idiopathic pulmonary fibrosis (IPF)


Idiopathic non-specific interstitial pneumonia (iNSIP)

Unclassifiable ILD

Other

Smoking

Medications

If you’ve been diagnosed with or exposed to something that can cause ILD, it’s time to take the next step.

Already Diagnosed with Chronic ILD with Worsening Fibrosis?

Take the next step by learning about ILD progression and ways to manage ILD where the scarring of the lungs has continued to worsen over time. You may hear this referred to as having a chronic ILD with worsening fibrosis.

We know how lost you might feel while searching for answers about ILD and how it may progress over time, but we’re here to support you.
Sign up to have information about ILD and how it may progress, including real stories and encouragement from people living with the disease, sent right to your inbox.
You’re not alone in this
—we’re just a phone
call away.

Learning about ILD can feel overwhelming, but we’re here to help. Call Lungs&You® to speak with a dedicated nurse who can help you get the information you need to help take an active role in your health.*

Lungs&You Call Center, Phone Icon

1-844-473-2638

Monday - Friday, 9 am - 6 pm ET

*Lungs&You® does not provide medical advice. Please consult with your healthcare provider if you have specific questions about your health.