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Focusing on You

While much of the focus might be on the person you care for, it’s worth taking the time to pause and consider what you want and need for yourself.

Taking care of someone else can sometimes have a toll on your physical and mental health, but it doesn’t have to.

When you’re supporting someone with interstitial lung disease (ILD), it can be hard to find a balance between your caregiving routine and other commitments, interests, or hobbies. But just as the person you care for might have their own goals in life, so should you.

Maintaining Relationships

Many caregivers say that they can feel isolated at times. With so many other responsibilities, it can be difficult to make time to see other people. But this is important. Don’t be afraid to ask for help (e.g., taking the kids to school, cooking dinner) to make time for yourself.

Working While Supporting

There is no ‘one-size-fits-all’ solution for caring for someone while working. Take time to think about what support is right for you.

It may help to explain the issues you face to your employer. This will mean they are aware of the situation if you experience problems or need some time off. You may also be able to discuss flexible ways of working.

Examples of flexibility include:

  • Making changes to your working pattern, such as flexible hours or working from home.
  • Recognizing that you may need time out for healthcare provider’s appointments or emergencies—plan who will cover your work, who you need to contact, and how your colleagues can get the information they need to cover you.

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