Monitoring Symptoms of ILD
Symptoms of interstitial lung disease (ILD) may progress over time. Your healthcare provider will
use a
combination of different tests you may be familiar with from diagnosis to track your condition.
Changes in your symptoms can indicate to your healthcare team if your disease is worsening. Talk
to your healthcare team about your symptoms and tell them about any changes you notice. Remember
that they can best advise you and may help you with some of these.
Track Your Symptoms
You might find it helpful to keep track
of your
symptoms and how you feel over time. Remember to make a note of any questions or concerns you
have. Sharing these with your healthcare provider will help you discuss your symptoms and get
the most out of
your appointment.
Watch for any worsening symptoms. These can include:
- Shortness of breath, especially with mild physical activity
- A cough that doesn't get better
- Tiredness and generally feeling unwell
- Gradual, unintended weight loss
- Rapid, shallow breathing
Remember to bring your completed symptom tracker with you to your next appointment. Symptom monitoring is a powerful tool that may help you have informed discussions with your healthcare provider and healthcare team.
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You’re not alone in this—
we’re just a phone call away.
Life with ILD can feel overwhelming, but we’re here to help. Call Lungs&You® to speak with a dedicated nurse who can help you get the information you need to help take an active role in your health.*
Monday - Friday, 9 am - 6 pm ET
*Lungs&You® does not provide medical advice. Please consult with your healthcare provider if you have specific questions about your health.